Donate to Finding A Voice For Lily

Donate to Finding A Voice For Lily

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YOUR DONATION WILL GO DIRECTLY TO LILY'S EYEGAZE DEVICE!

Meet Lily— Lily, like most 5-year-olds, loves Disney movies, bubbles, the color pink, and spending time with friends and family. Lily also has Rett Syndrome.

Some of how Rett Syndrome affects Lily— Lily is a wheelchair user and is not currently able to effectively communicate with her hands or with speech.

What is Rett Syndrome? Rett syndrome is a rare genetic neurological disorder that affects 1 in 10,000 females (and is even more rare in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: the ability to speak, walk, eat and breathe easily.*

Finding a cure— At Sonia Roselli, we love science and there are many reasons to be optimistic about a cure for Rett Syndrome…

Progress toward a cure • The cause of Rett is known: a random mutation on a gene called MECP2. This means that scientists have a target to attack the disorder.• Rett is not neurodegenerative, meaning brain cells don’t die, they just don’t function properly.• Rett symptoms have been reversed in mice.*

Help us support Lily and improve her quality of life.

How to Help— To help Lily with an alternative method of communication, we’re donating a portion of Giving Tuesday proceeds to help Lily get an eyegaze communication device. This device will provide crucial support in helping Lily communicate with her family and friends by tracking eye movement. This technology is proven but can be costly! YOUR DONATION WILL GO DIRECTLY TO LILY'S EYEGAZE DEVICE!

Help us support Lily and improve her quality of life.

*all Rett Syndrome info from https://www.rettsyndrome.org

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